Allen KL, Byrne SM, Lampard A, Watson H, Fursland A. Confirmatory factor analysis of the eating disorder examination-questionnaire (EDE-Q). Eat Behav. 2011;12:143–51.
Google Scholar
Allen KL, Jewell T, Carnegie A, Baker S, Downs J, Griffiths J, Breen G. Towards a national eating disorders clinical research network (EDCRN): co-producing core measures and variables. Eating Disorder Research Society, Sitges, Spain; 2024. https://edrs.org/EDRS_ONLINE/mobile/show_presentation.php?abstractno=161
Austin A, De Silva U, Ilesanmi C, Likitabhorn T, Miller I, Fialho MDLS, Richmond TK. International consensus on patient-centred outcomes in eating disorders. Lancet Psychiatry. 2023;10(12):966–73.
Google Scholar
Barkham M, De Jong K, Delgadillo J, Lutz W. Routine outcome monitoring (ROM) and feedback: research review and recommendations. Psychother Res. 2023;33(7):841–55.
Google Scholar
Boswell JF, Kraus DR, Miller SD, Lambert MJ. Implementing routine outcome monitoring in clinical practice: benefits, challenges, and solutions. Psychother Res. 2015;25:6–19.
Google Scholar
Bulik CM, Thornton LM, Parker R, Kennedy H, Baker JH, MacDermod C, Martin NG. The eating disorders genetics initiative (EDGI): study protocol. BMC Psychiatry. 2021;21:1–9.
Burke NL, Schaefer LM, Hazzard VM, Rodgers RF. Where identities converge: the importance of intersectionality in eating disorders research. Int J Eat Disord. 2020;53:1605–9.
Google Scholar
Bright TJ, Wong A, Dhurjati R, Bristow E, Bastian L, Coeytaux RR, Samsa G, Hasselblad V, Williams JW, Musty MD, Wing L, Kendrick AS, Sanders GD, Lobach D. Effect of clinical decision-support systems: a systematic review. Ann Intern Med. 2012;157(1):29–43. https://doi.org/10.7326/0003-4819-157-1-201207030-00450.
Google Scholar
Bryant E, Broomfield C, Burrows J, McLean S, Marks P, Maloney D, Maguire S. Gaining consensus on clinical quality outcomes for eating disorders: framework for the development of an Australian national minimum dataset. BMJ Open. 2023;13(4):071150.
Byrne SM, Fursland A, Allen KL, Watson H. The effectiveness of enhanced cognitive behavioural therapy for eating disorders: an open trial. Behav Res Ther. 2011;49:219–26.
Google Scholar
Centre for Clinical Interventions (2022) Research strategy: improving the lives of people with mental health challenges through world-class applied research. https://www.cci.health.wa.gov.au/~/media/CCI/Research/research_strategy/cci_research_strategy.pdf
Chekroud AM, Hawrilenko M, Loho H, Bondar J, Gueorguieva R, Hasan A, Paulus M. Illusory generalizability of clinical prediction models. Science. 2024;383(6679):164–7.
Google Scholar
Clayton-Erickson MC, Mellinger C, Park B, Dimidjian S. Stereotypes about who is affected by eating disorders disadvantage risk perception for black girls and women. Sex Roles. 2024;90(8):1075–98.
Couturier J, Isserlin L, Norris M, Spettigue W, Brouwers M, Kimber M, Pilon D. Canadian practice guidelines for the treatment of children and adolescents with eating disorders. J Eat Disord. 2020;8:1–80.
Cromarty P, Drummond A, Francis T, Watson J, Battersby M. NewAccess for depression and anxiety: adapting the UK improving access to psychological therapies program across Australia. Australas Psychiatry. 2016;24:489–92.
Google Scholar
Crone C, Fochtmann LJ, Attia E, Boland R, Escobar J, Fornari V, Medicus J. The American psychiatric association practice guideline for the treatment of patients with eating disorders. Am J Psychiatry. 2023;180(2):167–71.
Google Scholar
Dalton B, Austin A, Ching BC, Potterton R, McClelland J, Bartholdy S, et al. ‘My dad was like “it’s your brain, what are you doing?”’: Participant experiences of repetitive transcranial magnetic stimulation treatment in severe enduring anorexia nervosa. Eur Eat Disord Rev. 2022;30(3):237–49.
Google Scholar
Deisenhofer AK, Barkham M, Beierl ET, Schwartz B, Aafjes-van Doorn K, Beevers CG, Cohen ZD. Implementing precision methods in personalizing psychological therapies: barriers and possible ways forward. Behav Res Ther. 2024;172:104443.
Google Scholar
Devoe D, Han A, Anderson A, Katzman DK, Patten SB, Soumbasis A, Dimitropoulos G. The impact of the COVID-19 pandemic on eating disorders: a systematic review. Int J Eat Disord. 2023;56(1):5–25.
Downs J, Baker S, Carnegie A. Rapid response: meeting the need for a data-driven and co-produced response to pandemic disruption. BMJ. 2024;374:n1787.
Egbert AH, Hunt RA, Williams KL, Burke NL, Mathis KJ. Reporting racial and ethnic diversity in eating disorder research over the past 20 years. Int J Eat Disord. 2022;55(4):455–62.
Google Scholar
Fairburn CG, Beglin SJ. Assessment of eating disorders: interview or self-report questionnaire? Int J Eat Disord. 1994;16(4):363–70.
Google Scholar
Fairburn CG, Cooper Z, Doll HA, O’Connor ME, Bohn K, Hawker DM, Palmer RL. Transdiagnostic cognitive-behavioral therapy for patients with eating disorders: a two-site trial with 60-week follow-up. Am J Psychiatry. 2009;166:311–9.
Google Scholar
Flores LE, Muir R, Weeks I, Murray HB, Silver JK. Analysis of age, race, ethnicity, and sex of participants in clinical trials focused on eating disorders. JAMA Netw Open. 2022;5(2):e220051–e220051.
Google Scholar
Gangannagaripalli J, Albagli A, Myers SN, Whittaker S, Joseph A, Clarke A, Valderas JM (2022) A standard set of value-based patient-centered outcomes and measures of overall health in adults. Patient-Patient-Centered Outcomes Res 1–11
Glasgow RE, Kwan BM, Matlock DD. Realizing the full potential of precision health: the need to include patient-reported health behavior, mental health, social determinants, and patient preferences data. J Clin Transl Sci. 2018;2(3):183–5.
Google Scholar
Hanegraaf L, Anderson A, Neill E, Giddens E, Boon E, Bryant E, Verdejo‐Garcia A (2024) Treatment targets and strategies for eating disorders recovery: a delphi consensus with lived experience, carers, researchers, and clinicians. Int J Eat Disord
Jewell T, Smith I, Downs J, Carnegie A, Kakar S, Meldrum L, Allen KL (2025) Agreeing a set of biopsychosocial variables for collection across the UK eating disorders clinical research network (EDCRN). Preprint available at: https://doi.org/10.31234/osf.io/t5n3c_v1
Kan C, Treasure J. Recent research and personalized treatment of anorexia nervosa. Psychiatric Clin North Am. 2019;42(1):11–19.
Knapstad M, Nordgreen T, Smith OR. Prompt mental health care, the Norwegian version of IAPT: clinical outcomes and predictors of change in a multicenter cohort study. BMC Psychiatry. 2018;18:260.
Google Scholar
Kobori O, Nakazato M, Yoshinaga N, Shiraishi T, Takaoka K, Nakagawa A, Shimizu E. Transporting cognitive behavioral therapy (CBT) and the improving access to psychological therapies (IAPT) project to Japan: preliminary observations and service evaluation in Chiba. J Mental Health Train Educ Pract. 2014;9:155–66.
Krause KR, Chung S, Adewuya AO, Albano AM, Babins-Wagner R, Birkinshaw L, et al. International consensus on a standard set of outcome measures for child and youth anxiety, depression, obsessive-compulsive disorder, and post-traumatic stress disorder. Lancet Psychiatry. 2021;8(1):76–86.
Google Scholar
Kuehne C, Phillips MD, Moody S, Bryson C, Campbell IC, Conde P, Zocek L. Characterising illness stages and recovery trajectories of eating disorders in young people via remote measurement technology (STORY): a multi-centre prospective cohort study protocol. BMC Psychiatry. 2024;24(1):409.
Google Scholar
Levinson CA, Cusack C, Hunt RA, Fitterman-Harris HF, Ralph-Nearman C, Hooper S. The future of the eating disorder field: inclusive, aware of systems, and personalized. Behav Res Ther. 2024;183:104648.
Google Scholar
Lutz W, Vehlen A, Schwartz B. Data-informed psychological therapy, measurement-based care, and precision mental health. J Consult Clin Psychol. 2024;92(10):671.
Google Scholar
Moggia D, Lutz W, Brakemeier EL, Bickman L. Treatment personalization and precision mental health care: where are we and where do we want to go? Adm Polic Mental Health Mental Health Serv Res. 2024;51(5):611–6.
Mountford VA, Allen KL, Tchanturia K, Eilender C, Schmidt U. Implementing evidence-based individual psychotherapies for adults with eating disorders in a real world clinical setting. Int J Eat Disord. 2021;54:1238–49.
Google Scholar
Murray SB, Nagata JM, Griffiths S, Calzo JP, Brown TA, Mitchison D, Mond JM. The enigma of male eating disorders: a critical review and synthesis. Clin Psychol Rev. 2017;57:1–11.
Google Scholar
Naeem F, Pikard J, Rao S, Ayub M, Munshi T. Is it possible to provide low-intensity cognitive behavioral treatment (CBT Lite) in Canada without additional costs to the health system? First-year evaluation of a pilot CBT lite program. Int J Ment Health. 2017;46:253–68.
Nagata JM, Stuart E, Hur JO, Panchal S, Low P, Chaphekar AV, Ganson KT, Lavender JM. Eating disorders in sexual and gender minority adolescents. Curr Psychiatry Rep. 2024;26:340–50.
Google Scholar
Norris ML. Exploring biologically oriented precision mental health initiatives for the care of patients with eating disorders: a narrative review. Eur Eat Disord Rev. 2024. https://doi.org/10.1002/erv.3114.
Google Scholar
National Institute for Health and Care Excellent (NICE). (2017). Eating disorders: recognition and treatment
Ralph-Nearman C, Sandoval-Araujo LE, Karem A, Cusack CE, Glatt S, Hooper MA, Levinson CA. Using machine learning with passive wearable sensors to pilot the detection of eating disorder behaviors in everyday life. Psychol Med. 2024;54(6):1084–90.
Google Scholar
Richards KL, Hyam L, Allen KL, Glennon D, Di Clemente G, Semple A, Schmidt U. National roll-out of early intervention for eating disorders: process and clinical outcomes from first episode rapid early intervention for eating disorders. Early Interv Psychiatry. 2023;17:202–11.
Google Scholar
Sahiner B, Chen W, Samala RK, Petrick N. Data drift in medical machine learning: implications and potential remedies. Br J Radiol. 2023;96(1150):20220878.
Google Scholar
Schmidt U, Claudino A, Fernández-Aranda F, Giel KE, Griffiths J, Hay PJ, Kim YR, Marshall J, Micali N, Monteleone AM, Nakazato M, Steinglass J, Wade TD, Wonderlich S, Zipfel S, Allen KL, Sharpe H. The current clinical approach to feeding and eating disorders aimed to increase personalization of management. World Psychiatry. 2025;24:4–31.
Google Scholar
Solmi M, Monaco F, Højlund M, Monteleone AM, Trott M, Firth J, Carfagno M, Eaton M, De Toffol M, Vergine M, Meneguzzo P, Collantoni E, Gallicchio D, Stubbs B, Girardi A, Busetto P, Favaro A, Carvalho AF, Steinhausen HC, Correll CU. Outcomes in people with eating disorders: a transdiagnostic and disorder-specific systematic review, meta-analysis and multivariable meta-regression analysis. World Psychiatry. 2024;23:124–38.
Google Scholar
Unsworth G, Cowie H, Green A. Therapists’ and clients’ perceptions of routine outcome measurement in the NHS: a qualitative study. Couns Psychother Res. 2012;12:71–80.
Wakefield S, Kellett S, Simmonds-Buckley M, Stockton D, Bradbury A, Delgadillo J. Improving access to psychological therapies (IAPT) in the United Kingdom: a systematic review and meta-analysis of 10-years of practice-based evidence. Br J Clin Psychol. 2021;60:1–37.
Google Scholar
Wolpert M, Rutter H. Using flawed, uncertain, proximate and sparse (FUPS) data in the context of complexity: learning from the case of child mental health. BMC Med. 2018;16:82.
Google Scholar
Zipfel S, Lutz W, Schneider S, Schramm E, Delgadillo J, Giel KE. The future of enhanced psychotherapy: towards precision psychotherapy. Psychother Psychosom. 2024;93(4):230–6.
Google Scholar
link
